Long time!!!

Wow I have not realized how long it has been since I last posted on this blog. There has been a lot of turns in events since the last post. Robby started Kindergarten in September. It only took me until November that the Public School System is not for him. We took him out and started schooling him at home. It amazes me how much progress he has made. This has made a world of difference in him. Along with us not having to worry every time he leaves the house to go to school.

He is still on the MAD diet. And we believe this is controlling his seizures. He has a few breakthroughs every once in a while. (mostly when he is fighting off a virus) It has been 55 days since his last seizure!! I mean we are always walking around on eggshells and keeping our fingers crossed. But he is doing AMAZING.

This last month Robby has been participating in a PE class put on for WAVA students. PLU had students teaching the class for student teacher hours. He had so much fun and met a few new friends in the process. It also gave me some new moms to talk to that can relate.

Robby has a neurology appointment next week up in Seattle. So I will do my best to make sure I update to let you know what they have to say.

Have a good day

Fall is here...

It has been a long couple of weeks. Robby has started Kindergarten in a new school. It is really hard for me to put my trust into a whole new group of people. All though every thing seems to be going well with school. He has a fenominal teacher who is very on top of things. There was only one blip last week with school. There was a substitute teacher on friday. I tried to fill her in on Robby when I dropped him off. To say the least she didn't seem all that interested. I almost took him home with me that day. But I gave her the benifit of the doubt and told her to call me if anything happened. I did not recieve a call that day =) But then when robby got home on the bus, the busdriver handed me a bag of popcorn for robby. She stated  "he can't eat on the bus". And of course my comment was HE CAN'T EAT THAT AT ALL!! After dealing with a meltdown because Robby wanted the popcorn. I started to get upset. I was saddened that I couldn't give him a snack that normal children eat everyday. And I shouldn't have to deal with meltdowns because people who are supposed to be responsible for him at school know he can't have that.
I talked to his teacher and asked how much he gives his subs when he is not here. He stated that he is very thorough and all of robby's information is highlighted in his lesson plan. When I told him what had happened, he was very displeased and stated he would never use her as a sub again. That made me feel a little better.

After getting used to sending Robby to school and working on homework with him. We were starting to get comfortable with the routine.

Then on Wednesday last week He had a seizure at home. We have not dealt with any seizures since July. This seizure was very scary for Neil And I (as I am sure it was for Cole too). There was a lot of screaming across the house trying to get Neil's attention. I laid Robby on the floor to keep him from falling into the wall, but as soon as I did that he started to turn purple. I went into panic mode trying to find my cell phone and his emergency medication to make the seizure stop. OMG!! I know I work in a hospital but I have never watched someone turn colors like that. When He stopped seizing all the color returned to his face. I talked to a nurse later that day who finally asked me all the right questions and made me understand possibly why he changed colors like that. I laid him flat on his back, which could have made it so that his tongue was blocking his airway. Lesson to self... Always turn him to side if he is having a seizure.

OK, So I am probably rambling on more then I need to, So to make things short. Robby is doing great in school. And as long as we can keep him Virus free, he remains almost seizure free on The Modified Atkins Diet

Oh and it is Seahawks day... GO HAWKS!!

Zucchini Muffins... YUMM!!

Well we have not had a lot of time to post on here. But I wanted to share a new recipe I tried today. I found this recipe on pinterest and tweaked it to make it ok for Robby's diet.

Zucchini Muffins

1/2 C. Coconut Flour
1 C. Almond Flour
1/2C. Macadamia nut (ran through food processor to make flour)*
1t. baking soda
1/2 t. pumpkin pie spice*
3 eggs
1- 6oz container vanilla greek yogurt*
1/2C. sugar*
1-1/2C. shredded zucchini

1. in one bowl mix flours, baking soda and spices
2. in second bowl mix eggs, yogurt and sugar
3. mix 2 bowls together, then add zucchini.
4. place dough in muffin tins. should make 12 muffins
5. bake at 350 for 30-35minutes

*I used macadamia nuts in place of 1/2c of almond flour (recipe called for 1-1/2c almond flour) I used macadamia to up the fat content. I also used cinnamon and nutmeg for pumpkin pie spice since I didn't have that. I used sour cream for yogurt and used stevia drops for the sugar.

I only got 10 muffins out of this recipe but it should still be very low carb.

They just came out of the oven and smell delicious =)

Tonight I tried a new recipe. Found a low carb rendition of what one our favorite recipes used to be. Cheeseburger pie. I was a little unsure on how this was going to turn out with out a  trace of flour in the recipe. But it actually was really good. Even the picture turned out looking yummy. (this recipe also has the amount of fat Robby needs in his diet)

White Castle Hamburger Pie

A high fat and protein, low carb delectable pie suitable for a low carb lifestyle.

Ingredients

• 120 g cheddar cheese, grated
• 1/4 cup heavy cream
• 2 large eggs
• 1 dash pepper
• 1 dash salt
• 1/2 cup mayonnaise
• 500 g minced beef
• 1 cup shredded mozzarella cheese, nonfat

Directions

1. Brown the ground beef in a saucepan. Drain off the fat and season to taste with salt and pepper.
2. Add meat to a 9-10" pie plate and stir in half the grated cheese and top with the remaining cheese.
3. Beat eggs, mayonnaise and cream and add a dash of pepper.
4. Pour mixture evenly over ground meat and cheese.
5. Bake at 350 °F (180 °C) for 30-35 minutes.
6. Once cooked, cool and divide into 8 portions.
7. As a variation, add 1 packet onion soup mix or onion seasoning to the ground beef during browning stage.
8. Freezes well. Serve with a green salad or veggies of your choice.

Try it you might be surprised !!

68 days seizure free...

Well so happy to report that Robby has been seizure free for more then 2 months!! Sorry I have not been able to blog on here more often. Our life has been complete chaos trying to finish out the school year and get him ready for kindergarten. WISH US LUCK!!

On another point I have tried a new recipe last night for dinner. I wanted to make something like fried chicken that was not full of carbs, So that Robby can eat it. I made a nut crusted chicken. So yummy. I used pecans and almonds, mixed with parmesan cheese. Dipped chicken in egg, then in nut mix. baked in oven. The only thing I would change is to make sure I turn the chicken half way through baking. A little bit soggy on the bottom.

Well yes Robby was 68days seizure free this time around. He had a small seizure on Thursday. We are not sure what happened. There are alot of things to look at. We changed his vitamin this week. According to dietician at the hospital that probably has nothing to do with it. It has no carbs and is hypoallergenic. He had his preschool graduation on tuesday. I am a little worried that I went over board on his foods that day. It didn't seem like I did. I made his low carb Pizza and a low carb cake for him. I need to sit down and calculate everything. Really not alot of extra time to do that. (and now that it is past, I just want to make sure I am doing right as we go forward.) The last concern is that Cole has been very sick with Really high Fevers. So it is possible that robby's body is just trying to fight off a bug that he might have been exposed to. Gotta love Epilepsy, never really know what is causing the seizures.

Next week Robby is having and EEG. Praying for improvement in his abnormal brain activity.

Thanks to everyone who is reading this for their support. Robby (& Cole) are my life. I will do anything to make sure they have a Normal, Healthy, and Happy Life.

Long time since last post

Sorry about having such a lag between posts. It has been incredibly busy around our here. Well Robby has had a neuro psych evaluation done. I will not know the results of that until the 21st of this month. I thought it was to make sure he gets all of the services he needs for school, but I was told that it is just to create a base line of his development, so that they can make sure medically he doesn't go backwards.
I have been trying to figure out kindergarten placement for him next year. I never realized how complicated this can be. I have to make sure that I feel he is going to be safe in his environment, and finding a school with a full time nurse (per the school district). He can not go to the school 2 houses away from our home because they don't have a nurse on staff. On top of that criteria, I refuse to put him in a self contained special education classroom. He does not need that. He is SO smart. I also need to find a half day program because I do not want to worry about his diet during lunch time at school.

Now my next option if I can't find everything that I am look for. HOMESCHOOL!! It is really my last resort. But what I do know is that if my criteria isn't met, it IS NOT good enough for my special kiddo. I can make that commitment if I need to.

Robby's Preschool Picture 2012

Oh on a brighter note: Robby has been SEIZURE FREE for 40 days =) this diet is AMAZING!! We are gonna keep on chugging...

Seattle Children's Follow up appointment.

Well we had our appointment at Seattle Children's on Monday. Everything seems to be going really well. He hasn't had any seizures in about a month. I can't remember the date of his last seizure so I can't tell you the exact number of days. But since he is doing so well they are letting me try subtracting the fiber from his carb count again. We will pray that he doesn't have any seizures with this change. He was a bit deficient with calcium so he is starting on a calcium supplement. (My poor little guy is turning into a walking pharmacy). With all of these added supplements, I think I need to set up a med box for him. To make sure he is getting the right meds in the morning and at night. I am not always home to do it myself. :(

Next obstacle for me to conquer is finding a Kindergarten classroom I am comfortable with. I have been offered a mental health specialist through the school district that his helping with a lot of resources that I need to make the best decision for him. This is extremely helpful and appreciated.

So to sum this up, RIGHT NOW THE DIET IS WORKING!! So Happy!!